Vignette Name |
Need |
Current Approach |
Alternate Solutions |
What could be created |
Patricia |
She needs to find better ways to learn about newer technologies and how to use them. |
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No answers yet
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- Website provided by government that gives access to all resources and technologies out there to help caregivers
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Moe |
He needs help finding financial aid for his daughter. |
Was getting financial aid but it ended when his daughter turned 18.BC paraplegic association – only help quadriplegic and paraplegic , his daughter is hemiplegic so she is not covered.
He formed a non-profit for individuals who only care for 1 person but they are only getting $3000 attached with limitations. |
- Social aid is usually provided when someone turns 18 and cannot work even if living with parent
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No answers yet
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Peggy |
Peggy wants to find agencies that help adults with disabilities. |
Uses the resources of the Family Support Institute and Cerebral Palsy Association because her daughter has difficulty with mobility |
- Check government websites
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- Support an intergrated health care system
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Mark |
He wants a website where he can find all the information he needs on diseases, treatments, and services on a provincial level. |
He currently subscribes to newsletters from the Mayo clinic and frequently visits sites like the National Institute of Health and a variety of Canadian Health websites.He also visits a site specific to medication usage, where he can look up info and contraindications on a variety of medications. |
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- Website that offers information that is geographically relevant where we could enter in a postal code and local services are identified
- Work package CARE-RATE could be helpful - it is offered for dementia patients currently, but could be adapted to cancer patients
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Miles |
Miles needs help finding information about the tax side of finances. It’s extremely difficult to get information out of Fraser Health regarding guidance for future home care for his wife particularly ‘involuntary separation’. |
Currently uses software Quicken for finances. |
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- Tax credit can assist with additional costs for homecare or home support due to aging. This is offered in Quebec but not across the country. Policy across country that is equitable across provinces.
- A website that offers information that is geographically relevant. (Eg. enter a postal code so that local services are identified) Either Canada-wide or province-wide.
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Pandora |
Pandora needs help finding a new transfer belt for her father. Her father has one but it is hard on his skin and uncomfortable under the arms. |
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- Sew anti-slip material on inside of belt so that it does not slip up care recipient's body when used. Many different belts are available.
Principles for safe transfers: should NOT be under arms
Floor to ceiling pull
With individuals with Parkinson's, it's better for them to pull than to have something pull them
OT assessment to find a better assistive technology
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No answers yet
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Pilar |
Pilar needs help finding a fun daycare program for older adults where her husband could go twice a week – to help relieve caregiver burden. |
Caregiver comes in when Pilar is at work, but it’s still not the same. |
- In Netherlands person is picked up 2-3 days/week and goes to a facility that has social activities, interactions, field trips.
- Quebec- dementia patients have caregivers specialized in dementia. Sometimes the Alzheimers society will do it.
- Somebody could come in and do a specific activity with him- would have to be trained in this condition
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- Volunteer/ Buddy program for people with special needs, who both contribute and receive help from this program
- Match making between the person and activities he can do
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Priya |
Priya needs help finding funding her husband’s ATs. The power wheelchair that would be best for him is 40-50 thousand dollars. His extended benefits do not cover it. |
She looked into help from the government; they only offer about $3000. |
- Crowd sourcing and government programs
- Funding through ALS society
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- We need country policies, rather than at the provincial level
- Equipment loan pools established for ongoing, long-term loans. Red Cross only does temporary loans in most jurisdictions, and doesn’t lend powered wheel chairs. It should be covered by government so everything (e.g., maintenance) is covered, but users have to return equipment when it is no longer being used.
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Paola |
Paola needs a better adapted catheter. Her mother uses one that sticks to the skin and swivels a little. The other one she uses has a band with Velcro and does not swivel. She wants one that has Velcro and swivels. |
Paola sewed together the Velcro part of the catheter and the swiveling part, so that it would be best adapted to her mother. |
- Specialized nurses at an incontinence clinic would know about what products to use
- Regular OT assessment to see what additional options are on the market
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No answers yet
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Paisley |
Paisley needs help with caregiving. With her public health authority, she has some home care, but it is not enough. |
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- Public funding for caregiver relief programs
- Better resources available for CGs or volunteer programs (have to be well trained volunteers)
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Jeremy |
Jeremy would like access to a technical aid repair service. |
Jeremy called the manufacturers of his equipment but didn’t get the support he needed. |
No answers yet
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No answers yet
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