The vignettes below convey the stories of caregivers interviewed in our study, leaving out identifiable information. They provide a brief summary of each caregiver’s needs and approaches used, and seek feedback about alternative technologies that could be used to address these needs, and potential future solutions that could be created. This website is intended to allow caregivers, care recipients, healthcare professionals, innovators and others to contribute suggestions about existing solutions and potential solutions to be developed depending on the caregiver’s needs. The website may also function as a resource for caregiver and care recipients who are looking for solutions for similar issues they may have encountered. The search function may be helpful to allow you to find vignettes about similar needs.Please use the discussion section to suggest:
1) existing solutions they may not have tried
2) potential solutions that can be developed in the future
Vignettes
Adèle: A retired woman in her sixties who provides help to her husband who has muscular dystrophy as well as heart problems.
Agnès: A working woman in her sixties who is helping her ageing husband.
Anaïs: A working woman in her fifties who has helped her aging mother for 10 years. Her mother lives in a semi-autonomous seniors home.
James: A 70-year-old retired man helping his wife living with cancer and other related issues.
Jeremy: A retired man living in a semi-independent senior’s residence with his wife with severe rheumatoid arthritis whom he helps.
Jérôme: A man who helps his elderly father with arthritis and diabetes who lives in a semi-independent senior home.
Jimmy: A 75-year-old retired man helping his wife who has a neurodegenerative disease, weakness in the lower limbs, and mood changes.
Adrienne: A working woman in her fifties who helps her now grown-up daughter who lives with cerebral palsy.
Aïcha: A 70-year-old retired woman helping her husband who is quadraplegic and aging.
Alexia: A retired woman in her 60s who cares for her husband who has been quadriplegic for more than 20 years.
Alice: A woman in her 50s who is helping her quadraplegic husband with a neurodegenerative disease.
Andréa: A working woman in her sixties who provides help to her husband living with muscular dystrophy.
Anne: A retired woman in her sixties who is helping her quadraplegic husband.
Audrey: A working woman in her fifties helping her father who lives in a long-term care hospital.
Joël: A man in his 60s working part-time who takes care of his wife who suffered a stroke.
Joffrey: A retired man in his sixties who is helping his wife who is living with cancer, an autoimmune disease, and a neurodegenerative disease.
Jonathan: A man in his sixties who takes full-time care of his brother living with cerebral palsy.
Joseph: A retired man in his 60s who helps his quadriplegic wife.
Julien: A working man in his sixties helping his wife who has been living with multiple sclerosis for 20 years.
Justin: A retired man in his sixties who is helping his wife who had a stroke.
Mark: An older man caring for his wife who has been diagnosed with cancer for the past 20 years.
Mason: A man who takes care of his father who has had Alzheimer’s for 10 years.
Matthew: A middle-aged man who takes care of his mother who has lung cancer.
Mauricio: An older man who takes care of his mother who has broken both hips.
Michael: A older man who takes care of his father who has aphasia and suffered a hemorrhagic stroke.
Miles: An older man caring for his wife who has late onset Huntington’s Disease.
Milo: A man who takes care of his mother who is living with dementia.
Moe: An older man caring for his daughter who has Down’s syndrome.
Murphy: An older man caring for his wife who has a spinal cord injury and is paraplegic.
Paige: A woman caring for her husband with a progressive neurological condition.
Paisley: A woman who lives with and takes care of her husband who has Parkinson’s and a back fusion.
Paloma: An older woman who takes care of her husband who has rapidly progressing brain disease.
Pamela: Pamela is an older woman taking care of her husband, who has Parkinson’s disease.
Pandora: An older woman caring for her father who has dementia associated with Parkinson’s.
Paola: A woman who takes care of her mother who had a stroke.
Paris: A woman who takes care of her mother who has Alzheimer’s disease.
Pascale: An older woman caring for her husband who had a stroke and has cardiovascular problems.
Patricia: A middle-aged woman caring for her father who had a stroke, a heart attack and is suffering from Parkinson’s disease.
Pauline: A woman caring for her partner who has Alzheimer’s, arthritis, and lower back pain.
Pearl: A middle-aged woman who takes care of her husband who has problems with executive functioning, anxiety, and organizing.
Peggy: A woman with arthritis who cares for her daughter who has dietary restrictions, mobility, and cognitive impairments. She also cares for her mother with who lives with muscle spasms, which affect her speech, vision, and mobility.
Penelope: An older woman caring for her mother and son with cerebral palsy.
Perry: A woman who takes care of her mother with vascular dementia, osteoporosis, arthritis, and hypertension.
Persia: An older woman caring for her husband who has Parkinson’s Disease.
Petra: A woman who takes cares of her friend who has suffered from multiple strokes, is diabetic, and has had depression.
Petunia: A woman caring for her mother who has diabetes, cardiac and breathing problems, and her son struggling with a form of autism.
Peyton: An older woman who cares for three older adults, who all experience general age related functional decline.
Pheonix: A woman who takes care of her mother who has dementia, congestive heart failure, and has had a pacemaker put in.
Phoebe: An older woman caring for her mother who has dementia and cancer.
Pilar: A woman who takes care of her husband who was diagnosed with Huntington’s disease 20 years ago.
Pippa: A woman who takes care of her older mother who has breathing problems, which affects her mobility.
Poppi: A woman who takes care of her mother with dementia, anxiety, depression, high levels of stress, and type 2 diabetes.
Portia: An older woman caring for her mother who has osteoporosis, hypertension and bladder problems.
Primrose: A woman who takes care of her father with severe dementia.
Priscilla: A woman caring for her mother who has dementia and arthritis.
Priya: A woman who takes care of her husband who was diagnosed with a neuromuscular disease 8 years ago.