Adrienne is a woman in her fifties who works full time. She is helping her daughter, now an adult, who is living with cerebral palsy. Her daughter moves in a motorized wheelchair and uses a communication device. Her daughter goes to school three days a week. They have hired a helper that gets her ready for school and to unpack when she comes home.
Needs | Current Approaches | Alternate Suggestions
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What could be created? |
1. Adrienne wants to make eating easier and safer for her daughter when she isn’t around. Particulars: requires temperature control, forbidden foods, liquid speed, special utensils, bite reflex. |
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2. Adrienne would like to have new safe meal ideas for her daughter who is currently limited to pasta and purees. | |||
3. Adrienne would like to safely help her daughter transfer into the bath tub. Problems encountered: the bathroom can’t be adapted, the bath is not long enough. |
Adrienne uses a reclining Rifton bath bench and a wheelchair lift. A helper needs to handle the lift. | ||
4. Adrienne wants her daughter’s toothbrush to be safer. | Adrienne takes care of her daughter’s oral hygiene with an electric toothbrush, but worries that the head of the toothbrush could come off if her daughter bites. |
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5. Adrienne would like to ensure the integrity of her daughter’s skin. | Adrienne monitors her daughter’s skin | ||
6. Adrienne would like a safe wheelchair for winter travel. | |||
7. Adrienne would like a more effective solution to manage her daughter’s deformed wrist which is causing her a lot of pain. | Her daughter is currently wearing an orthosis, which is not very effective in terms of pain. | ||
8. Adrienne would like scheduling medical appointments to be easier. | |||
9. Adrienne would like to have easier access to additional caregivers and more respite services. | |||
10. Adrienne would like the follow-up services of technical aids (maintenance, advice, etc.) to be improved. | Adrienne uses the wheelchair emergency repair service, but says the opening times are short and you have to make an appointment. | ||
11. Adrienne would like it to be easier to dress her daughter who has spasticity. She would also like to find suitable clothes. | Adrienne dresses her daughter by putting her on the electric bed. |